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See also:


    http://www.alkaptonuria.info/   » The Alkaptonuria Society - Information about this genetic metabolic disorder for patients and professionals. Includes FAQ and a registration page for sufferers.

    http://www.gig.org.uk/   » Genetic Interest Group - Information about this umbrella group of organisations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.

    http://www.jsuk.btik.com/   » Joubert Syndrome in the UK - Support group for families of children affected with Joubert Syndrome.

    http://www.moebius1.org/   » Moebius Syndrome Support and Resource - Information on a rare genetic condition, issues for children and adults, and a resource list.

    http://www.pxe.org.uk/   » PiXiE - Organisation supports sufferers of Pseudoxanthoma Elasticum (PXE). Includes information about the condition and its causes, guidance on managing it, and contact details.

    http://www.williams-syndrome.org.uk/   » The Williams Syndrome Foundation - Information for parents, carers, and professionals about a non-hereditary syndrome which can cause brain damage in varying degrees, combined with some physical side-effects.


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